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How might we increase the number of registered bone marrow donors to help save more lives? Read the challenge brief

Concept

Department of Motor Vehicles AND Marrow

Hate waiting forever at the DMV (Department of Motor Vehicles)? What if, when you are filling out your car registration or driver's license application(which often includes opt-in or mandated choice questions for organ donor & voter registration), you are also asked whether you want to do a cheek swab on the spot to register as a bone marrow donor? If you do, you’d get a cool bones badge on your driver’s license (next to the heart showing you’re an organ donor), keychain, license plate, or bumper sticker to spread awareness (and perhaps swaying the nice officer who pulls you over for a traffic violation to let you off with a warning), but you also get put to the front of the line.
To implement this in the US, probably best to partner with, study, and follow the example of the not-for-profit alliance Donate Life America/Donor Designation Collaborative (http://donatelife.net/), which has increased # of registered organ/tissue donors 43% to almost 100 million since launch a few years ago (with DMV registrations accounting for 97%+ of registrations in most states). This effort included everything from integration into DMV drivers licensing to creation of awareness raising campaigns including brochures & posters right at the DMV. To give a sense of the potential opportunity, Be The Match's marrow registry currently has <10 million registrants.


Note: though I personally dig the cool look of the bones symbol, it's definitely worth creating and testing other symbols to choose the one with the broadest appeal.


This concept builds on inspirations (and associated comments) linked below, especially Chris F’s insightful ideas.


Waiting images borrowed from Chris’s Inspiration: http://bit.ly/gNICp2

Heart Image Attribution: http://www.eyehook.com/free/love.html

Car Image Attribution: http://xkcd.com/80/

Which barrier(s) does your concept address?

  1. Time

Which step(s) of the journey does your concept apply to?

  1. Awareness
  2. Registration
  3. Spread the word

1

How easy is this concept to implement?

I could start right now.
This might take a bit of planning and probably some help from several partners.
This is a big undertaking and I'd need a lot of help from friends, organizations and other groups to make it happen.
2

Will this concept successfully reach and encourage under-represented populations (including South Asians) to join the bone marrow registry?

Yes, this concept will resonate with diverse groups of people from all over the world.
No, this concept might not reach under-represented populations very well.
I'm not sure, but I hope so!
3

How well does this concept dispel myths, ease fears, or provide education about bone marrow registration and donation?

Really well -- I already feel like I have a better understanding of the process and why it's important.
Okay, though it'll still take some explaining to get people to understand how bone marrow registration and donation work.
Not very well -- we'd have to create a highly detailed plan around this concept to help people understand.
4

How scalable is this concept?

This concept is highly scalable and could easily impact people all over the world.
This concept is really best suited for small groups and local areas.
This concept could be scaled, but we'd have to refine it for different settings.
1

How easy is this concept to implement?

2

Will this concept successfully reach and encourage under-represented populations (including South Asians) to join the bone marrow registry?

3

How well does this concept dispel myths, ease fears, or provide education about bone marrow registration and donation?

4

How scalable is this concept?

5

Tell us any additional comments you might have about this concept.

Comments

Join the conversation and post a comment.

April 25, 2011, 11:15PM
Congrats on the winning concept Vincent. A practical, implementable solution to such a daunting issue; very impressive.
Vincent Cheng's reply to Sheila Sitaram's comment
April 26, 2011, 04:38AM
Thanks for the vote of confidence Adam =) Hope 100K Cheeks, the Haas Center, & OpenIDEO can bring these promising concepts towards realization to save more lives!
April 20, 2011, 12:47AM
Hey Vincent, thanks for pulling the inspiration through to a winning concept! well done!
Vincent Cheng's reply to Sheila Sitaram's comment
April 20, 2011, 02:37AM
Thanks Kate. Nice insight on your inspiration =).
April 19, 2011, 09:44AM
Vincent, good job! Congrats!
Vincent Cheng's reply to Sheila Sitaram's comment
April 19, 2011, 10:14PM
Thanks Krassimira! You've really been rocking on the challenges as well. In particular for marrow registration, I'd love to see some more hero registration gifts out there: http://bit.ly/eCXI9x
April 18, 2011, 08:04PM
Ashley--one way to get started would be to reach DonateLife.net, the organization Vincent mentions, for ideas and assistance. There is contact info (both at the national and state level) on their website. And when it comes to reaching out to lawmakers, you might consider an approach such as the one used by New York Sen. David Carlucci and Assemblyman Felix Ortiz--make it personal: http://tinyurl.com/3o4t5xh

Congratulations Vincent for a great idea.
Vincent Cheng's reply to Sheila Sitaram's comment
April 18, 2011, 08:49PM
Absolutely what I was thinking Gaynelle!

In addition, when lobbying, may be helpful to begin with those who have been helping pass state legislation for the 2006 Uniform Anatomical Gift Act ( http://uniformlaws.org/Act.aspx?title=Anatomical%20Gift%20Act%20(2006) ), which streamlines organ donation practices to allow & encourage driver's license donor registration. 20 states enacted this in 2007 and more state continue to introduce and enact it (2011 includes Maryland, Massachusetts, & Pennsylvania). Lawmakers who supported this are likely to be sympathetic to marrow registration as well.
April 18, 2011, 07:15PM
One of the things the OpenIDEO team discussed with the Haas Center and 100K Cheeks was the question of how this idea might actually start getting implemented. Could someone create a petition drive? Could we lobby local and state politicians? How might we think about taking this concept "off the pages" of OpenIDEO and into real life?
April 18, 2011, 06:13PM
Definitely good concept, I like the incorporation of the registration through a common. Congratulation !
April 18, 2011, 05:53PM
I think Vincent's idea to promote the bone marrow registry and conduct cheek swabs at DMVs is worth pursuing. A drivers license must be the most commonly used form of identification in the US. Piggy-backing on an existing infrastructure that people are already involved in and familiar with (regardless of age, ethnicity, class, urban/rural residence, etc.) may reach people who might be missed through other forms of outreach. A driver's license requires regular renewals, unlike a Social Security card, and individuals' contact with their DMV is scattered throughout the year (unlike a Census, which happens at the same time for everyone and requires a lot of temp workers to implement). A challenge would be to work with each state to implement the program.
April 14, 2011, 07:25PM
I really like this idea of using the DMV to increase registrations because people are already "primed" for indicating organ donation as part of getting or renewing their license. I offered the comments below in the evaluation template, but thought it might be helpful to have them here as well.

I think there is a difference between donating organs after you're deceased (easier to contemplate because we really don't think too much about it, it appeals to our altruistic nature, and it doesn't require any real effort on our part once we're "gone") versus donating stem cells or marrow which involves a real commitment in terms of time and effort. In other words, marrow donation is an "active" commitment versus a more passive one.

In an effort to remove some of the potential barriers / objections to registering, you might consider offering a "choice" of the type of stem/marrow donor you'd be. While the default selection for the DMV donor organ program is that any organ or tissue may be used, they do offer the ability to check off a "donor limitations" option.

With the "Be The Match" marrow registry, by signing up you are agreeing to donate via PBSC or marrow transplant. While the PBSC donation may be similar to a blood draw (although it is a bit more involved because it requires several days of filgrastim shots prior to the stem cell collection), the marrow transplant requires general anesthesia or regional anesthesia (spinal or epidural) and potentially an overnight hospital stay. It seems like the greater degree of commitment required for a bone marrow donation may give people second thoughts about registering.

What if potential donors had the ability to specify they'd be a PBSC donor or a PBSC + Marrow donor. Perhaps as a PBSC donor they indicate they'd be willing to be contacted if a marrow donation was required. (In other words, provide an "opt-in" for a marrow donation, rather than automatically agreeing to this more complicated procedure.) It strikes me that people might be more ready--particularly in a DMV environment--to sign up for something similar to a blood donation than they would be to sign up for a donation requiring a surgical procedure. And if its true that 80% of donations are done via PBSC, then you could think of this as serving the majority of the people needing this type of donation. The unknown in this equation is how many people don't register because they would need to commit to donating via either method, and if the option to register for a PBSC donation only would lower the barriers to registering.

Applauded your efforts!
Vincent Cheng's reply to Sheila Sitaram's comment
April 14, 2011, 08:55PM
Thanks so much Gaynelle for your thorough and thoughtful comment! Not only is your suggestion to provide PSBC vs. marrow donation options a potential optimization for this concept, but it’s also broadly applicable to most of the marrow registration concepts in this challenge.

I agree it’d be great to get the data on follow-through for these different scenarios, whether through pre-existing research or a live experiment (as I doubt a self-report survey would be accurate here). That way we’d be able to make an informed decision on how best to present registration options.

Thanks again for your astute analysis! Hope to see more of it here in the future =)
April 11, 2011, 06:11PM
very clever - as with another one of your ideas - you've done a good job of capitalizing off of existing infrastructure, procedures/routines, and people flow.
March 19, 2011, 01:49PM
I really like the link here of the responsibility you have as a driver as well as as a person that is old enough to drive a car. I find especially for young drivers who just got their license, this is a great moment to raise awareness.
Megan, great point that the focus might get lost. Maybe renaming/re-positioning it - less organ/bone marrow donor but rather "social responsibility" or even a more catchier phrase - to simply ask: What are you willing to contribute? You are (in the case of the younger) now old enough to decide!
March 18, 2011, 07:04PM
After your last comment, I understood what you meant. I like the idea about combining the 2 within the registration process. I wonder if the message gets lost with advertising for both though. That's why I focused on just one. Anyone else want to weigh in?
March 18, 2011, 02:07PM
Think this is a great way to reach a larger audience that is already giving in some form. I wonder where else we could have these packets available too.
March 17, 2011, 02:39AM
Thanks for the support everyone! There's definitely a natural linkage between marrow registration and the pre-existing organ donor opt-in on driver licenses. @Sarah: glad to here that this would have worked for you =). Great build about having bone marrow-specific awareness raisers target busy DMV's with relevant underrepresented populations. Also, even if these folks can't be at all DMVs, the information, swab kits, and incentive system could still be implemented throughout the system (since the process is simple enough that Be The Match already recruits people online by getting them to sign up for mailed self-registration kits).
March 17, 2011, 12:14AM
Yes! I am just getting my driving license in the US and signed up for organ donation, I would have signed up for bone marrow too. I spent so much time waiting that I could have easily gotten my swab taken too while I was there. Bone marrow folks can't be at all dmv's always, but perhaps they could do a rotation once a week and if at any one time there was a shortage for a particular type of patient, perhaps they could focus on dmv's in areas with relevant populations.

It's all about making it easy.
March 17, 2011, 12:09AM
I really like this idea. As I was reading through some of these concepts, I thought - this is kind of like the organ donor thing on the back of your license and the voila your concept.
March 15, 2011, 11:10PM
I like the idea of connecting it to drivers licenses as bone marrow donation makes me think of organ donation and thus the DMV - makes sense!
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